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This is dedicated to our life with Emma and her newly diagnosed type 1 diabetes. Information, ranting, and updates is what you will find in here.
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8 comments:
I guess in one word - confusing.
I can't make decisions, I feel desperate. I want the feelings to end.
It's maddening, inconvenient, and not predictable.
It will be nice when emma can illistrate this to us in this form.
I can see her fight her emotions when she is low at times, it breaks my heart.
Spacey. Disconnected. Ungrounded.
Knowing what you want/need but being unable to get it - like me going into the kitchen in the middle of the night to look for glucose tabs, when I have them in every corner of my bedroom.
Having a tiny sliver of your rational brain working - enough to tell you that something is wrong and make you scared that you can't get yourself back.
lows can leave me feeling lost, confused, frustrated & disconnected for sure & sometimes sad for no reason at all ... as sometimes when tears come for no reason it can be good signal to test :)
Reading this from Molly, Minnestoa and Randee has been the most powerful thing I have ever read. Zack is too young to describe in such detail. This truely breaks my heart that he has to go through this. I would give anything to trade spots with him.
I too have confusion and feel a disconnect. I also get blurry vision. Not bad, but it's like my eyes can't focus.
There are the physical symptoms which include heart beating differently, clamminess, eyes feeling like they are darting rather than moving smoothly, hands shaking slightly, vision warping a bit, weakness like you just...want...to...sit down.
Then yes, the mental affects. I'm a very happy person. I know I must be going low if my thoughts turn to depressing things or paranoid things. And in stronger lows the spaciness sets in. Taking ages to decide to go downstairs and get some juice, taking ages to decide what I want to counter my low (rather than my usual action of just grabbing the juice).
And an interesting point I just explained to my husband (our son is now diabetic so I try and pass on all my experiences bit by bit in case they apply to what we need to kow with our son). At night, adrenalin kicks in hard for me and wakes me up if I'm low. Heart pounding, sweat, the crazy thoughts. Likewise, if I'm trying to go to sleep and skimming low, adrenalin keeps me awake. So I know that if my son or myself are having trouble falling asleep (unusual for both of us), check the blood sugar: the reason could be an incoming low.
Thanks Anonymous. That was really nice of you to go into such detail. It really painted a vivid picture for me as every time it happens to you it revisits it vividness.
I amsorry to hear your son has this disease too. I do not want to say your lucky for knowing what your son is going through and feels on a day to day basis, but i think it is an advantage on how he manages it through his life.
Thanks.
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