Last week our Endo was really impressed on how we were sitting over the past year and actually took time to reflect with us. There was in intern with her too so i thought that was a great thing to do with her there.
Doctor Sellers asked us what has been the biggest change in the past year? It is by far the fear factor.
One year ago both Denise and myself were absolutely petrified. There was nothing more frightening than thinking that we have to draw medication from a vile, measuring it properly and injecting it into our daughter.
The fact that if the dose is wrong or inaccurate that will make Emma sick and compromised.
Emma will be alone walking to school one day. She should be getting slurpees with her friends after school. She will eventually be out of our line of site. This may cause this disease to find vulnerability in our little girl and hurt her.
Emma is going to be teased. She will be looked at differently from many people including family, friends, co-workers. Emma will cry because of this. She will have to worry about this instead of worrying about if her shoes are "in" or her braces may look weird.
It is very fearful.