I have mentioned before that i have been to two JDRF walks in the past. And you know that was about the extent of it. I was there. I didn't know much about the day, the people, or the disease. But now i know why I am there. My life and interests seems to have taken on a entire new purpose. I am now an advocate for Juvenile Diabetes.
Before last months seminar on the teen brain (mentioned in earlier post). Both me and Denise would be unsure on how to approach Emma's diabetes to family, friends, co-workers and acquaintances. But after being involved with this the past 6 or so months we have realized that it is safe and necessary to educate people about this. I do not hesitate anymore when discussions about family comes up or health related conversations arise. I know i need to interject and advocate for my daughter, family and friends who have all been affected by Diabetes.
Last week we were blessed with Emma's blood sugars being sureal'ly weird. Weird in terms of too perfect. Every morning i tested her at 7:30 her fasting sugar was 5.6. Yes!....Monday to Friday 5.6! It is amazing what can happen when everyone pulls together. Mom, Auntie Linda (daycare), and myself. I feel those numbers are out there for the taking. And at this point there is no reason why we cannot obtain those type of numbers on a day to day basis.
This may be a type of self affirmation. But i am writing this today on here because i believe those who read this will notice the type of work it takes raising a child with TYPE 1. And i know you all do know and go through it day to day in one capacity or another.
Please understand the impact that this online community has had on our attitude and outlook on this disease. It is not only the day to day that affects us on here it is what does Emma have in store for her down the road. Who will be her support. How will she manage her life.
It is essential that we surround ourselves with people who understand, and with people who want to understand.
Yesterday at the JDRF walk kick off we were surrounded by amazing people who care. They do not only care about their situation but want to be there for everyone else. It is nice to be a part of the masses who channel their energy the same way we do.
The problem with not posting in a long time is that there is so much to say i end up not really saying anything. I want to still be a part of this community and your lives so i owe it to you this to post more often. I like reading your stories, your daily struggles and most importantly your daily triumphs.